Newsroom of

Cure SMA

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Elk Grove Village, Illinois - 60007 United States
Phone: 8477096319
Website: http://www.cureSMA.org

Cure SMA is dedicated to the treatment and cure of spinal muscular atrophy (SMA). SMA is a disease that robs people of strength by affecting the motor nerve cells in the spinal cord, taking away the ability to walk, eat, or breathe. It is the number one genetic cause of death for infants.

Since 1984, we’ve directed and invested in comprehensive research that has shaped the scientific community’s understanding of SMA. We've invested over $58 million in research through a comprehensive research model that includes basic research, drug discovery, clinical trials, and clinical care.

We are currently on the verge of breakthroughs in treatment that will strengthen our children’s bodies, extend life, and lead to a cure. There are now 17 ongoing drug programs in the pipeline, and seven of those are in clinical trials. Cure SMA has provided funding for over half of the programs currently in the pipeline.

We have deep expertise in every aspect of SMA—from the day-to-day realities to the nuances of care options—and until we have a cure, we’ll do everything we can to support children and families affected by the disease. This includes hosting the Annual SMA Conference each year. The conference is really two separate events—one for families, and one for researchers—that run in parallel, so that researchers and families can interact with and learn from one another. The conference is the world's largest focused on SMA, and it attracts top scientists and clinicians.

Learn more about how you can help us reach a treatment and cure at www.cureSMA.org.

Cure SMA Announces the Launch of Phase 2 SMA Industry Collaboration

Cure SMA, a leading national non-profit organization dedicated to the treatment and cure of spinal muscular atrophy, today announced the launch of Phase 2 of the Spinal Muscular Atrophy (SMA) Industry Collaboration. The SMA Industry Collaboration is a multi-faceted partnership…

RUSP Nomination for SMA Accepted into Evidence Review

The Secretary's Advisory Committee on Heritable Disorders in Newborns and Children (SACHDNC), part of the U.S. Department of Health and Human Services, today announced that they have accepted spinal muscular atrophy into the review process for the Recommended Uniform Screening…

Cure SMA Awards $75,000 Grant to Chris Lorson, PhD, University of Missouri

Cure SMA has awarded a $75,000 research grant to Chris Lorson, PhD, at the University of Missouri, for his project, "Examining the role of astrocytes and the influence upon lower motor neuron susceptibility in SMA."SMA is caused by a mutation…

Cure SMA Awards $140,000 Grant to Christine DiDonato, PhD, Ann & Robert H. Lurie Children's Hospital of Chicago

Cure SMA has awarded a $140,000 research grant to Christine DiDonato, PhD, Ann & Robert H. Lurie Children's Hospital of Chicago, for her project, "Skeletal muscle activators as potential modulators of muscular weakness in SMA."In SMA, the ability of the…

Cure SMA Awards $30,000 Grant to Remy Bordonne, PhD, CNRS-Centre National de Recherche Scientifique, France

Cure SMA has awarded a $30,000 research grant to Remy Bordonne, PhD, at CNRS-Centre National de Recherche Scientifique, for his project, "Identification of the protective mechanism of a SMN modifer gene using S. pombe as a model organism".In SMA, actin,…

Cure SMA Awards $140,000 Grant to Joceyln Côté, PhD, University of Ottawa

Cure SMA has awarded a $140,000 research grant to Joceyln Côté, PhD, at The University of Ottawa, for his project, "Investigating the mechanism by which SMN regulates translation: identification of novel therapeutic targets."Understanding the function of the SMN protein is…

Cure SMA Awards $140,000 Grant to Arthur Burghes, PhD, The Ohio State University

Cure SMA has awarded a $140,000 research grant to Arthur Burghes, PhD, at The Ohio State University, for his project, "Identification of SMA modifiers and deletion/duplication junctions in the SMA region."All individuals with SMA lack the SMN1 gene, but have…

Spinal Muscular Atrophy Submitted to the Recommend Uniform Screening Panel

Cure SMA, a national non-profit dedicated to the treatment and cure of spinal muscular atrophy, in partnership with members of the SMA Newborn Screening Coalition, have announced that spinal muscular atrophy (SMA) has been submitted to the Recommended Uniform Screening…

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