Media Newsroom of

The Ehlers-Danlos Society

P.O. Box 87463
Montgomery Village, MD 20886

The Ehlers-Danlos Society is a global community of patients, caregivers, health care professionals, and supporters, dedicated to saving and improving the lives of those affected by the Ehlers-Danlos syndromes.

The Ehlers-Danlos Society Announces Worldwide Research Study to Identify the Genetic Cause of Hypermobile Ehlers-Danlos Syndrome

The Ehlers-Danlos Society Announces Worldwide Research Study to Identify the Genetic Cause of Hypermobile Ehlers-Danlos Syndrome

​The Ehlers-Danlos Society is excited to announce the start of recruitment for participants in the Hypermobile Ehlers-Danlos Syndrome Genetic Research Study, devoted to finding the underlying genetic markers for hypermobile EDS (hEDS). Since the announcement of the extraordinary “Moonshot” donation…

International Symposium Convenes to Address Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders

With over 275 scientists, clinicians and patient organizations from around the world, The 2018 International Symposium on the Ehlers-Danlos Syndromes is bringing together the brightest minds in Ehlers-Danlos (EDS) research and clinical management to tackle some of the most pressing questions…

Ehlers-Danlos Society Taps Medtech Maverick and Fintech Innovator to Join Board of Directors

Ehlers-Danlos Society Taps Medtech Maverick and Fintech Innovator to Join Board of Directors

The Ehlers-Danlos Society has elected Dr. Woodrow Gandy of Dallas and Philip Hotchkiss of San Francisco to its board of directors. “Dr. Gandy and Mr. Hotchkiss are strong additions to our board, both broadening the expertise of our team through…

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