Press Release (ePRNews.com) - CHARLOTTE, N.C. - Mar 29, 2019 - The Multiple System Atrophy Coalition (MSA Coalition) announced today that it has been named a “2019 Top-Rated Nonprofit” by GreatNonprofits, the leading provider of user reviews of charities and nonprofits.
The MSA Coalition is the nation’s oldest and largest nonprofit organization dedicated to support, education, research and advocacy for multiple system atrophy, a rare and devastating neurological disease.
“We are honored to be named a Top-Rated Nonprofit for the fourth consecutive year,” says Cynthia Roemer, chair of the Multiple System Atrophy Coalition. “This year’s award is incredibly special to us, in this, our 30th anniversary year of dedicated service to the multiple system atrophy community. We are so thrilled to announce that in the first three months of 2019, we have earned 30 new 5-star reviews from those we serve. We are proud of our accomplishments over the past year, including our ongoing commitment to stage the only two-day annual support and education conference for MSA patients and their families, sponsoring of the International MSA Congress for the scientific community and hosting the first-ever Global MSA Advocacy meeting with other like-minded charities to foster a community of support and care for this rare neurological disease. We are also very excited to unveil more details soon about our new patient-centric MSA Research Grant Program, which will build upon the nearly $1.7 million in research grants previously awarded by the MSA Coalition.”
The Top-Rated Nonprofit Award is based on the rating and number of reviews that the MSA Coalition received from volunteers, donors and aid recipients.
“The MSA Coalition is a unique community of dedicated, caring people brought together by the common goal to ultimately defeat an insidious, rare disease, multiple system atrophy,” writes Jim Duffy in his review at GreatNonprofits.
“Patients, caregivers, families, friends and researchers are energized by the incredible support they receive from the Coalition. And supporters of the nonprofit Coalition know that their donations will be managed and allocated to the highest standards of charity giving. Dealing with a progressive, terminal disease so rare can add isolation to the emotional and practical challenges of the battle. My late wife and I so appreciated meeting and sharing with people that spoke ‘MSA.’ The MSA Coalition is a truly remarkable collection of stakeholders that tirelessly demonstrate strength and compassion,” Duffy continues.
“The MSA Coalition is a great example of a nonprofit making a real difference in their community,” says Perla Ni, CEO of GreatNonprofits. “Their award is well-deserved recognition not only of their work but the tremendous support they receive, as shown by the many outstanding reviews they have received from people who have direct experience working with them.”
GreatNonprofits is the leading website where people share stories about their personal experiences on more than 1.6 million charities and nonprofits. The GreatNonprofits Top-Rated Awards are the only awards for nonprofits determined by those who have direct experience with the charities – as donors, volunteers and recipients of aid.
View the complete list of 2019 Top-Rated Nonprofits from GreatNonprofits.
About the Multiple System Atrophy Coalition
The Multiple System Atrophy (MSA) Coalition is a positive beacon of hope standing up to a little-known, rare, insidious disorder. Since 1989, the MSA Coalition has been devoted to improving the quality of life and building hope for people affected by multiple system atrophy by focusing on a four-pillar mission:
- Providing patients and caregivers with trusted and compassionate emotional support
- Educating patients, care partners and healthcare professionals with credible, critically important and relevant information
- Funding patient-centric collaborative research aimed at alleviating symptoms, slowing disease progression and discovering a cure
- Building a sense of community by connecting and unifying people affected by MSA.
The MSA Coalition is the premier U.S. nonprofit organization dedicated to support, education, research and advocacy for this devastating neurological disease. Thousands of participants benefit from the annual MSA Coalition Family Conference, which is live streamed and posted online. With multiple online discussion groups and a dedicated support line, someone is always there to help. As the host of the first-ever Global MSA Advocacy meeting, the MSA Coalition works with other like-minded charities to foster a community of support and care. As the leading nonprofit funder of global multiple system atrophy research, the MSA Coalition has a proven track record of catalyzing research collaborations and with the advice of our world-renowned Scientific Advisory Board, selecting and funding the most promising research efforts around the world.
To learn more, visit the Multiple System Atrophy Coalition website or call our support hotline toll-free at 866-737-5999.
About Multiple System Atrophy
Multiple system atrophy, previously known as Shy-Drager Syndrome, is a rare and fatal disorder with less than 15,000 Americans diagnosed and 35,000 undiagnosed at any given time. According to the National Institutes of Health, “Multiple system atrophy is a progressive neurodegenerative disorder characterized by symptoms of autonomic nervous system failure such as fainting spells (neurogenic orthostatic hypotension) and bladder control problems, combined with motor control symptoms such as tremor, rigidity, and loss of balance and muscle coordination.”MSA affects both men and women primarily in their 50s. MSA tends to advance rapidly over the course of six to 10 years, with progressive loss of motor skills, eventual confinement to bed and death. There is no cure or remission from the disease.
GreatNonprofits is the leading site for donors and volunteers to find stories and ratings of nonprofits. Stories on the site influence 30 million donation decisions a year. Visit www.greatnonprofits.org for more information. Source :
Multiple System Atrophy Coalition