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Project Alive

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P.O. Box 384 Thompson's Station, TN 37179
Tennessee - 37179 United States
Phone: 313-312-5483
Website: http://projectalive.org
Project Alive

Project Alive is a leading Hunter Syndrome research and advocacy foundation. Project Alive raises awareness of Hunter Syndrome globally, funds curative research for the disease, and advocates for patients and families affected by Hunter Syndrome. Campaigns by Project Alive have garnered celebrity and broad media attention. Project Alive was formerly named Saving Case & Friends, Inc.

Project Alive was founded by Melissa Hogan, a lawyer by training, writer by passion, and advocate by necessity, and is dedicated to her son Case’s fight against Hunter Syndrome, which affects an estimated 2,000 boys worldwide.

Filmmaker Releases Documentary About His Dying Son In An Effort To Save Him

Filmmaker Releases Documentary About His Dying Son In An Effort To Save Him

Finn Muedder, a smiling and energetic three-year-old, was diagnosed with Hunter Syndrome (MPS II), a rare and terminal disease, in the fall of 2016. Now his parents, Jon and Allison Muedder of Charlotte, NC, are helping raise $2.5 million needed…

Rare Disease Foundation Receives $125,000 Grant to Help Fund Clinical Trial

Rare Disease Foundation Receives $125,000 Grant to Help Fund Clinical Trial

Project Alive, a leading Hunter Syndrome research and advocacy foundation, is thrilled to announce it has received a $125,000 grant from the Nashville-based Clark Legacy Foundation. These funds will support Project Alive's goal to fund a cure for Hunter Syndrome…

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