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PWS Press Releases

Levo Therapeutics Announces Initiation of the CARE-PWS Phase 3 Study of Intranasal Carbetocin for the Treatment of Prader-Willi Syndrome

Levo Therapeutics, Inc. announced today that enrollment is underway in its Phase 3 clinical study of intranasal carbetocin (LV-101) for the treatment of Prader-Willi syndrome (PWS). The study is a multi-center, randomized, double-blind, placebo-controlled study called CARE-PWS.  “We are excited to bring…

World's Largest Newborn Screening Study for Four Rare Disorders Launches

The Angelman Syndrome Foundation and the Foundation for Prader-Willi Research announce funding to support the world’s largest newborn screening study for four rare genetic disorders: Angelman, Prader-Willi, Fragile X and Dup15q syndromes. The Victorian Medical Research Acceleration Fund this year…

Levo Therapeutics Announces Publication of Phase 2 Study Results and Planned Phase 3 Study of Intranasal Carbetocin for the Treatment of Prader-Willi Syndrome

​Levo Therapeutics Inc. announced today that JCI Insight has published the results of a Phase 2 study of intranasal carbetocin (LV-101) in patients with genetically confirmed Prader-Willi syndrome (PWS). Results from the study suggest that the investigational product LV-101 has marked effects on core features of PWS,…

FPWR Researchers Publish Latest Results

The Foundation for Prader-Willi Research (FPWR) is pleased to share remarkable progress that has been made towards its mission of eliminating the challenges of Prader-Willi syndrome (PWS) and advancing therapeutic development. Two notable discoveries supported by FPWR have recently been…

Foundation for Prader-Willi Research Announces Hire of Chief Executive Officer

​The Foundation for Prader-Willi Research (FPWR), a nonprofit organization dedicated to supporting research that advances the understanding and treatment of Prader-Willi syndrome (PWS), announced today that it has hired John Walter as its new Chief Executive Officer. Walter is the…


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